| Every week Bipolar
World gets some pretty interesting mail - so interesting in
fact that we want to share it with everyone, as we're sure
they will enjoy reading it too.
Whether it's a beef or a bouquet - a
point of view or a bit of obscure news we'd like to see it.
You can send it personally to us at
owners.bpw@bpworld.org
Although email addresses and personal information are left off
the letters if you wish to reply to one of the writers send
that to me too and I will forward it on to them
Though most of the mail
considered will come to me for this purpose, don't be too
surprised if you write somewhere else and I write back asking
if we can print your letter.
Bipolar Parent - September 24,
2006
I was reading
about the lady whose husband is Bipolar and her concerns with
her
children being with a person with Bipolar. Although every
situation is different,
I just wanted her to know that I am a single mother of three
children between the
ages of 2 and 6 and I am bipolar. I successfully raise my
children 75% of the time
on my own. I am in a regular treatment and have a safety net
if something where to happen. I know my cycles well and what
is coming. My children and I are great. I believe that as long
as a bipolar person is in regular treatment, and has control
of their disorder, they can make great parents.
Stacy
January 17, 2006
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Insomnia
Insomnia my unwanted
companion,
is there no one else you can torture?
My eyes are heavy, my shoulders ache,
sleep eludes me,
and you are to blame.
Insomnia, how I hate you, you rob me of my rest,
deplete my energy,
my body aches, my head hurts.
Insomnia, you thief, you stealer of life,
how can I be productive,
how can I be a good mom,
How can I smile, how can I be competent,
when no brain cells can rejuvenate,
Because of you........you thief of sleep
copyright Deborah A Roderick 2005
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January 7, 2006 - Depression -
Carol
It would be great if you would
take 3 minutes and read my views on depression and bipolar. I
have relatives affected with depression, including myself, and
I'm drawn to dialogue intelligently on the subject.
As I understand it, cognitive therapy is the process of
replacing negative thoughts with positive ones. This was
meaningful to me, in that the counselor I worked with for two
years discussed, listened, laughed and marveled over life,
with me.
I reject an expert/patient relationship. I am a teacher and I
learn from my students as they learn from me. Yes, I lead, but
as a facilitator. This is my vision of health care
professionals also. I take ultimate responsibility for my
education and my health - not any doctor. My hunch is that the
basis of 'mental illness' is in part organic, and greatly due
to a high level of sensitivity in an individual see Elaine
Aaron's work). I deny the validity of "bipolar" and resist it
strenuously. It is unhelpful, and harmful to put the guinea
pig type meds into people; and extremely damaging for people
to be stigmatized and identified with any sort of mental
illness label. In fact, there is an invisible no man's land
between "normal" and "supernormal" mental/emotional behavior.
Under stress, "normal" people can and do exhibit symptoms of
mental illness. To a great extent if you believe you are okay,
you are. Eccentric perhaps, but mentally ill? The matter is
relative. Mood swings are in part, due to issues of esteem or
inferiority/superiority complex, which can be worked on
WITHOUT medication.
I am looking forward to, within 5
years, a shift in the "expert" medical community, which will
have them concede that in large part, depression is organic,
and can and will pass with good old fashioned time,
exercise, nutrition, emotional support, etc. Unfortunately
many will be pill-dependent and despondent, perhaps deceased,
by then, due to overuse of experimental medications. The
intentions of physicians and psychiatrists are good, but we
know where good intentions can lead. If you would feed these
meds to your son or spouse, I guess you really believe in
them. I prefer the road less traveled.
What it has meant for me is roughly one serious depression,
lasting about 3 months, every 10 years. I am extremely bright,
musical, a procrastinator, an independent thinker. In some
ways my life could be nicely slotted into the bipolar II box.
I choose to live and think outside the box. Once, during a
serious depression 3 years ago, I was told I had to accept the
"fact" that I would need lithium and meds for the rest of my
life. I considered, read widely, fought bravely to make it
through the depression, and did
so on my own terms, with the assistance of a good counselor.
My 22 year old niece, on the other hand, is on 4 meds,
lithium, effexor, a kind of speed to bring her up and a kind
of sleeping pill to bring her down. She is doing her best to
finish university. Granted we may be very different people (I
am 41). But I'll be damned if I trust my body and mind to this
kind of regimen. Thankfully, I'm doing fine with the slings
and arrows and wonder of life. Good luck with your work
Fats and Oils
I looked over your fine site and I have a bone to pick
regarding your Fats/Oils pages. Nut oils like walnut oil and
canola oil are poor sources of omega 3 and contain only
about10% ALA -C18. And actually have NO omega 3 (EPA/DHA) but
have ALA which the body "can" convert into EPA/DHA. However it
is speculated that much of ALA is not converted into the C20
and C22 by humans. Recent studies found on Pubmed indicate
that depressed rats have a high Aracahnoidonic Acid/Omega 3
levels. And actually it is the high AA and not low levels of
omega 3 levels that cause depression.
Depressed
individuals should limit all foods and oils that contain LA
and limit saturated fats! They should focus ONLY on oils like
Flax oil, olive oil, and some fish oil. Canola contains 35%LA,
and only 10% ALA, and Olive oil contains only 7% LA! Most
people (like myself) think they are eating healthy yet for
decades they are unwittingly getting almost all of their fats
from sources high in LA and saturated fat! And it may take
numerous months to turn the tide. A strict diet containing
food items such as as avocado, wild salmon, sardines, talapia,
flounder,green vegatables, and flax and olive oil plus fish
oil followed for at least six months may lower symptoms.
Most people attempt this for a short time and unvariably give
up, but does one really expect decades of being out of balance
to be corrected in just a few weeks! After symptoms are
reduced it would make sense to add a limited amount of
saturated and LA oils into the diet. It has worked for me. So
just adding EPA/DHA (fish oil) in even high dose without
reducing Arachindonic Acid in ones diet may explain why many
bipolar individuals get little if any relief! It is the
lowering of AA in the diet that may be the key with adding
fish oil as an added benefit that helps tip the scale. I
always hear about the wonders of fish oil but little is
mentioned about the importance of limiting LA and saturated
fat in bipolar treatment and I hear tons of stuff on which
fish oil and how much- while I bet 90% just keep on eating as
usual. It is similar to people who takes supplements and feel
they can cheat and eat garbage and they are 'more' protected.
~ Gil Rosenberg
Thank you for
writing to us at Bipolar World Gil
You obviously
know a whole lot more about fats and oils than I do
I am starting
a new area at Bipolar World for letters we receive. I think
yours is a good one and informative. May I reprint it?
Thanks
Colle
That would be great! I have very good results restricting my
diet and adding a EPA/DHA fish oil supplement (with a bit
higher EPA content) and with the addition of 800 mcg of
Chromium Picolinate. All other "alternative treatments" were a
waste of time and money and I have tried nearly all of them,
including "True Hope" empower plus. True hope was a waste of
time and money and I was refunded my money. The product
cost an estimated $4 to make and sells for $148 a month! That
is nearly a 4000% profit!
I
hate when people profit from the severely ill. However the
exposure to true hope and the discover magazine article led me
to Chromium picolinate. I read the Chromium Connection by Dr.
McLeod and after corresponding with him by email he seems quit
honest (unfortunately he recommends a low dose fish oil). I
questioned his financial relationship with Nutrition 21 and he
told me the truth and the fact that he got involved with the
co. AFTER his discovery of CP and it's relationship with
depression. I was very pessimistic regarding CP but after
giving it two weeks it had a big impact on the symptoms. Both
these combinations CP and Nordic Naturals 7g EPA/4.5g DHA and
my diet changes have led to a reduction of about 75% of my
symptoms and I am medication free for now. Currently my
pharmacist friend gives me the fish oil at his cost as well as
the CP. this is all done with my doctors approval- which
surprised me!
But for a person with bipolar (which should be called cycling
illness) such changes at say a retail level would be
expensive. The fish oils would cost almost $6 and the CP about
70 cents plus the wild salmon each day ($18.99/lb.) adds
another $3.25. Add some flax seed oil and high end olive oil
and that is $12 per day.
My diet is a ketogenic diet, I should add, the kind that they
are testing out at Stanford University hospital on bipolar
patients. But I emphasize Olive oil, some coconut oil and a
bit of flax oil -something that they likely will not include.
A ketogenic diet which is a high fat low protein and
carbohydrate diet may have antidepressant properties. I was
afraid to try this with all the " you got to have carb's so
that tryptophan can enter the brain" stuff but it turns out to
be nonsense. Determining what is real and PR is not easy since
much of the information out there is misinformation.
I
have attended a number of MSG sessions and found them to be
terrible since the people who come there like to talk about
how awful life is and how terrible the medication side effects
are and how they were wronged. I get the feeling that many
enjoy being identified as bipolar or depressed- after all it
supposedly is the new fad these days. I wish there was a pro
active group that would have meetings that would encourage
adoption of helpful add ons that would make people have less
symptoms and be symptom free bipolar. But MSG membership is
about 3,500 at $45-$65 a membership not including donations
and sales from books, tapes, and lectures. So just a handful
of people make over $250,000 since they rely on volunteers and
the space for meetings is donated. But such a positive
proactive group is unlikely to happen since it is not self
perpetuating- since in my concept such a group would last only
8 weeks with new members entering the next one.
One last mention on Andrew Stoll M.D. In my opinion he is
unethical and amoral by pulling a bait and switch. He
published that great book advising epa and dha with higher epa
dosages and then makes his virtually exclusive EPA supplement
which is way to expensive! what's more it may be less
effective than a EPA and DHA combined dose. Yes DHA alone may
be a dud alone but the data was not in for him to jump
ship. Even the ethyl-EPA going through Phase III trials is
looking like a dud. It is amazing what people will do for
money! Clearly he wanted to profit and there were too much
competition with EPA/DHA brands. I hate to think that bipolar
patients are taking Omegabrite and then give up on fish oils.
It happened to me and it is hard to get the money back since
it may take at least 8 weeks to get the right dosage. thanks
GR
Stigma and
More – Steve January 1, 2006
I read through
"Double Standard" and have to say, that in many ways I agree
with what you are saying. There are already far to many
stigmatisms associated with Bipolar, and other mental health
issues. However, we have to be careful not to become so
wrapped up in a push for education, understanding, and yes,
appreciation from those who do not suffer the effects of these
disorders, that we lose the ability to laugh at ourselves.
In Jim Carry's
performance, there were many aspects that offended me. Not
because of the split personality, but because they were just
plain raunchy and served no point in the progression of the
movie. Outside of that, the fact that people talking about the
movie opens doors of conversation on the topic gives those of
us who know about, and suffer from these mental health issues
the ability to BALANCE the humor with the reality of the pain.
Balance is the
key. The ability to not only let yourself feel the pain and
work through it, but to see the humor in some of what we do
and laugh. And, just as an FYI, Jim Carry suffers from mental
health issues. Check around the net, you'll find multiple
sites. God bless our efforts as we struggle to make the best
of this world. Goof
For me, the
biggest issues I face with peoples misunderstandings of BP, is
not the laughter, but the fear. My life at times feels like a
35year long feature of Godzilla as played by Steve. Going
through life watching the masses run from me like so many
roaches when you turn on a light.
And what am I
supposed to tell them... don't worry about the 6'3" irritated
manic guy? I have gotten to the point where all the people in
my life are given the same speech. It goes something
like..."You should know I have BP" answer the Pandora’s box of
questions here "It is a very difficult illness to deal with
not just for me, but takes its toll on those around me.
When... not if... when the day comes that you have reached
your limit, I understand. I only ask that you don't try to get
in a kick or two before you exit." And how can I blame people?
If it were possible, I would have left me years ago. My
overall goal is to make sure that when they do leave it is
with an understanding that BP doesn't mean dangerous, it
doesn't mean heartless, and it doesn't mean immune to the
pains associated with the illness. That BP is an illness, not
a disorder (the implications of the word disorder tend to
imply BP is simply a mal adjustment to societal workings) and
that life with BP is hard enough, we don't need people passing
and acting on judgments of our lives, especially when those
judgments are founded in ignorance.
I generally
put the idea in terms like: Would you call a one armed woman a
bad mother because she had to feed her child without holding
them? Would you call a one legged man lazy because he couldn't
race a mile without a wheelchair? Would you say a person with
Epilepsy was just trying to be the center of attention? Would
you say a child with Dyslexia was stupid? Well, you get the
idea.
One thing has
brought a new light to the tunnel of ignorance, is the new
direction of research, and brain imaging, that are putting BP
in the realm of disease. Which brings me to a final notation
of this mini novel of an e-mail. There has been some recent
confirmation of a study done in 2000 that found a breakdown in
cells taken from the hippocampus region of BP brains
postmortem. The cells are called mitochondria and exist within
all cells of the human body. Mitochondria cells are
responsible for the production of ATP, the energy required by
all cells to exist and function. The key factor is that
mitochondria have their own DNA structure. This study combined
with the overwhelming evidence that electromagnetic fields can
interfere with the electrical bond of DNA structures, sheds
new light on the importance electromagnetic pollution (EMP)
may play in the treatment of BP. I would encourage you.. if
you haven't already, to take some time and research the
information I have very briefly touched on.
A Brief Glimpse of a Mixed Mood –
December 12, 2005 – from Lisa
I hate that you have such power over me that you can close
me away so easily and not consider how it is tearing me
apart. What makes you so damned special? I searched for
you all night and couldn't find you. I needed to talk to
you. Why are you hiding from me? What did I do that is so
bad? I'm so broken - my spirit, my soul - void of the
capacity for tolerance and love.
Panic is coming over me more and more even the simple ring,
ring of the telephone has my skin crawling, causing
explosions in my brain I can't take the pain much longer. I
curl up and cry and sweat and pray for death to overcome me.
Just to be free of this agonizing pain in my brain that
rolls around and around until I can't breathe. I can't be
liable for the world anymore. Why are they all trying to
make me responsible for their
happiness? What can I do? Sometimes I think that I shall
spend the rest of my life curled up in the corner of my
porch away from all of the commands and demands an
reprimands of this grotesque society that sucks the light
out of our souls. People trying to drown me in their own
emotional neediness.
I want logical conversation of eternal truths not filled
with supposition of false worth and adulation. I can't hear
how good I am or should be or need to be because I am not
good at anything anymore. Stop it. Just stop telling me
lies to make yourself feel better, more worthy, more
important than me, or less so. What the hell is all of
this anyway? The rise to the pedestal is too faulty - the
steps are not steadfast or strong. Surely I will fall from
grace once I am up there and devastate your world. It is
clearly not my place to be so stop pushing me to climb those
steps. I don't belong at the right hand of God dispensing
judgment and penance upon those who are not better or worse
than I am. Yet this is what is expected of me - to be a
goddess - a savior of those who can't stand on their own but
would have me control the strings of their pathetic puppet
lives.
Don't ask me to give you my strength. I have so very little
of it on my own. You who listen to the wisdom of my soul but
hesitate at the critical moment of truth, standing there
waiting for the bells to toll and they never do. You speak
a grand game of victimization and chains of your own fears
while your own flesh and blood falters sitting still in
their own fears of abandonment. Why are you waiting for me
to be your rock? I am but a
speck of dust - inconsequential in all of this I can't take
you by the hand when my hand is in my glove and lead you
there it is a trap you are setting for me to fail in my
divine purpose yet again. Get up or don't. But don't lay
it on me. Tie your own shoes because frankly I would rather
hang myself with the laces and leave this place of unholy
unrest. What is right or wrong in this world anyway? Is one
soul worth any more to God than any other? And if you do
not see your own kids is it not your OWN fault? They are
small - the weak ones shaken from the tree of life, and you
let them sit rotting on the ground while you ponder whether
to get the bucket to harvest them? They can't say what is
good for them in the end so why do you listen to their
screams and dreams and close your heart and eyes to the
truth that is before you?
Make a plan and stick to it. Stop wavering and wandering
around in the mud complaining that your shoes are not clean
and therefore you can't go into the valley. Wipe your face
and your tears and quit tearing at my heartstrings to help
you when you clearly want to sit on your ass and wait for me
to do it all for you so you can blame me in the end when
everything falls apart and nothing is as it seems or as it
should be. Stop talking to me and watching me waiting for
some signal that isn't going to come. Go away. Get away
from me and leave me the hell alone. I don't want you in my
life. Any of you. I don't want to be responsible for all
that is wrong with this world anymore. I just want to
whither here. I just want to shrink away and not be anyone
to anyone to anyone else. Do you SEE now? Do you SEE? You
are not special. I am not special. We are all worthless
-nothingness. You love my "REALNESS". What is REAL?
Feelings, thoughts, aren't we all a part of some big
illusion?
There is no pure good. Nothing worth remembering or
fighting for. No you would love me just to see me trip and
in tripping you would be disgusted that I could fall when
you are already lower than me to begin with by your own
choosing. What is THAT? Why do you want to strip me down
to my bare bones like that? Can you hear the voices
reverberating in my head? They point out your truth to me.
They are laughing at all of us at how pathetic we all are.
They want me to pull you in so I can squish you and leave
you bleeding like I have bled on the threshold of
nothingness. They tell me the truth even when you would lie
to me. They know I am no good. They know that I am a lie -
even when I do not. They promise me relief, but deliver me
to pain. Just like you do. Acting like you care about me
when you really just want to take what little strength I
have and absorb it as your own.
Dispensing wisdom in a world where I don't fit lost in my
own abyss of empty memories no joy - no sparks - just
numbness that encompasses me – binds me and gags me. People
walking all around me in a frenzy of life that I cannot feel
or touch or taste. I see more than they will ever realize –
the truth of our utter and complete meaninglessness I can't
even pretend to feel anymore even that has gone from me -
isolated in a crowd of pretenders. It's all so pathetic
really and then the ghosts….the ghosts creep around me with
taunts of their own. "HA HA” they moan. You aren't even
real. See how everyone just walks by? They don't even see
you. You are invisible like us. You are nothing and no
one. A void of meaningless space. A person without a soul,
only a face, .a place for your ugly mask to hang."
December 18, 2005
I just want to be normal. To FEEL normal. Not this messed
up bullshit where I am continuously worried about whether I
am too happy or too sad or if other people are going to
think that I am crazy and taking all of these damned drugs
is driving me crazy too. Reaction here, reaction there oh
now I’m fat – now I can’t eat now I have a fucking rash all
over my body and I have to dump more drugs in to stop the
itching. I can’t keep worrying about all of this stuff.
And therapy – why do we open boxes that should stay closed?
I don’t want to know that my father doesn’t love me. I want
to pretend that he does and feel okay with that. I have so
much rage inside of me. Cutting away the pain was my only
solution Wednesday night. I don’t want to know anything
anymore. I want to be blissful in my delusion that I
actually have any worth. But everyone wants something from
me. The world is full of takers, fakers, insanity makers.
So what if I go manic again? I spend so much time
depressed. Can’t a girl have fun? There is no relief from
these damned drugs. Not when we have to fight the effects.
Take this to go to sleep, take that to wake up, take
something else to bring you down….oh, too far down….take
this to bring you up although it will SEDATE you and you
won’t know if you are up or down or anything because the
whole world is revolving around the multitude of drugs that
you have to pump into your body just to have some sort of
stamp on your forehead from society that you are okay. This
all sucks. It’s way too much work. Way too much worry and
mood manipulation. And none of the drugs do what they
really SHOULD do which is change the stupid assholes OUT
THERE! No, they are to make me a conformist to all of THOSE
people OUT THERE.
A sheep in wolves clothing is what
I am. My tender spirit far exceeds that of everyone else.
They are not enlightened – so I have to change? They can’t
behave themselves and be nice to each other – and I am just
supposed to bend over and take their crap without a word or
thought or deed? These drugs are poison…poisoning my mind,
body and spirit. I can’t believe that any of this is real.
Going down the list of very poor choices for my future. Do
I want a deadly skin rash or do I want to feel disoriented
and have visual hallucinations? Hmmmmmmmm? And here is THE
question of the day…will any of this MAKE MY DAD LOVE ME?
When is he going to love me?
I would take all of the drugs in
the world for just that ONE thing.
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